Mid pleasures and palaces though we may roam,
Be it ever so humble, there’s no place like home;
A charm from the sky seems to hallow us there,
Which, seek through the world, is ne’er met with elsewhere.
Home, home, sweet, sweet home!
There’s no place like home, oh, there’s no place like home!
– John Howard Payne
What more can be said?
I grinned from ear to ear when I saw my home, breathed in the smells, and then cried with relief. The ramps were perfect, the garden looked good, and I was back among my own things after so, so long. The pets, however, weren’t too sure that it was me and took a few days to accept me again. I think they were confused because I sounded right but didn’t move.
Progress has been good. Three weeks after my homecoming I started sliding my hands up the sides of my legs and onto my lap. I can now:
- Lift my arms to shoulder height when seated, and touch the wall behind my head when in bed.
- Scratch my nose and adjust my specs myself!
- Stroke and pat our pets.
- Use a Tablet. See “Tips & Advice” page for more information.
- Transfer to a wheelchair with the help of 1 person, not 2.
- Stand for 2 minutes while pushing against a sideboard. (I still need 2 people to stand me up and sit me down.)
- “Walk” short distances while seated in the wheelchair.
- Push myself short distances in the wheelchair.
Jeff has continued to treat me at home 2-3 times a week. Emma is still with us but, for about three months, we had a problem finding a suitable second nurse. Either they didn’t come back after the first week or we found them unsuitable. Luckily, “Nina” was allocated one week and has been coming back every second week ever since. Both Emma and Nina are great nurses and good people and I’m very fortunate to have them help me.
My daily routine consists of doing exercises after I wake up, being washed at 8am, then dressed and taken to the dining area where the Tablet and mobile phone are set up. After breakfast I work on the Tablet or read or go outside into the garden. I go back to bed after lunch, rest for 2 hours, do more exercises, get up at 5pm, spend time with hubby and supervise the making of supper. It’s back to bed at 8pm where I do more exercises while I watch TV. I’m usually asleep by 10:30pm.
A few days after coming come friends brought me a TV which they hadn’t used for 2 years. It was a gift. I have truly been humbled by the kindness and generosity of family, friends and colleagues and hope that I will be able to repay them all in kind in the future.
We’ve been to the shops a few times and visited friends. We have tickets for a live show on 7 September and I hope to go to a craft market soon if the weather holds. I’d love to go to a movie but have discovered that many theatres do not have space for wheelchairs even though they all have wheelchair ramps! Some pavements are also not always wheelchair friendly, being too bumpy or too narrow; things I didn’t notice when able-bodied…
Today is 31 August and I have been home for exactly 7 months. Has my 15-month journey made me more patient? No, but I have learnt that some things are not as important as I used to think they were and I have become more tolerant. Have I let go of all my quirks? No, but I wouldn’t be me if I did. The first psychologist taught me how to visualise a certain scene to reduce frustration. I’ve got to the point where just the initial thought about the scene will make me laugh. I’d like to think he would be pleased by my progress. 🙂
We can’t change the past and the future is not ours to design, so I live in the moment, treasure people more and take pleasure in really looking at nature. My first psychologist will be proud of me. I’ll never give up. I’ll forge on, exercise, and add posts as I progress. If anyone wants to contact me, please use firstname.lastname@example.org. I won’t have all the answers but will help with advice where possible.
Your living is determined not so much by what life brings to you as by the attitude you bring to life; not so much by what happens to you as by the way your mind looks at what happens.
– Khalil Gibran
Thank you for taking the time to read about my life and thoughts.
© louisehasgbs 2014. All rights reserved.
Disclaimer: This is a personal account of my experiences. Discuss all treatment, therapies, medication, diet and supplements with your own doctor and/or specialist.