About Me & About GBS

LIFE’S A JOURNEY, NOT A DESTINATION. – RALPH WALDO EMERSON

 

I am a woman, in my 50’s, and have always been an optimist.  That optimism has been very sorely tested at times since my diagnosis in May 2013 but one thought has always pulled me through: most people do recover from Guillain-Barré Syndrome (GBS).

During my stay in ICU the doctors asked me to write a book about my experiences so that other recoverees and their families, friends and care-givers, can understand what some of the emotional and physical challenges are. I chose to blog instead to reach more people. To create this blog, I initially sat at a table with a 10.1″ Tablet placed on a recipe book holder and a rubber-tipped stylus held between my teeth. Where there is a will there IS a way! 😀

My family, friends and colleagues have been vital to my recovery.  I could not have got this far without their love and support.  I have been humbled by their thoughtfulness and generosity.  Friends cooked for my family, brought me treats when I could swallow again, and provided much-needed massages.  My hospital rooms were festooned with “get well” cards, messages of encouragement, photos, drawings and soft toys; books, stories and articles were read to me; visitors helped relieve the tedium and monotony of hospital routines with their news, jokes and gossip. I have also joined an international online support group for patients and their families:http://www.guillainbarresupport.org

GBS is an uncommon illness which affects any age group and gender, the symptoms range from mild to severe, and recovery can take months or years.  The cause/s are unknown but most people have a recent viral infection or vaccination in their recent medical history.  My cause appears to have been a 24-hour stomach bug a week before the GBS developed.

Read here for detailed information:

  • Brochures from GAIN website (Guillain-Barré & Associated Inflammatory Neuropathies).
  • GBS/CIDP (Chronic Inflammatory Demyelinating Polyneuropathy) Foundation
  • NINDS website (National Institute of Neurological Disorders and Stroke).
  • Information about myelin sheath, demyelination and GBS, plus links to references and related websites are on Wikipedia.

To make for easier reading, I have told my story in sections:

  1. First 3 weeks
  2. Intensive Care Unit (ICU)
  3. Rehabilitation Hospital (Rehab)
  4. Home at Last!
  5. Medication, diet and supplements
  6. Tips and Advice.

My name is not Louise.  I am writing anonymously so as not to disclose the names of the institutions I was admitted to or the medical staff who treated and cared for me.

© louisehasgbs 2014. All rights reserved.

Disclaimer: This is a personal account of my experiences.  Discuss all treatment, therapies, medication, diet and supplements with your own doctor and/or specialist.

One Response to About Me & About GBS

  1. Joan Fane says:

    You are an example to us all and i can’t wait to read all you have to say about the road you have travelled

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