LIFE’S A JOURNEY, NOT A DESTINATION. – RALPH WALDO EMERSON
I am a woman, in my 50’s, and have always been an optimist. That optimism has been very sorely tested at times since my diagnosis in May 2013 but one thought has always pulled me through: most people do recover from Guillain-Barré Syndrome (GBS).
During my stay in ICU the doctors asked me to write a book about my experiences so that other recoverees and their families, friends and care-givers, can understand what some of the emotional and physical challenges are. I chose to blog instead to reach more people. To create this blog, I initially sat at a table with a 10.1″ Tablet placed on a recipe book holder and a rubber-tipped stylus held between my teeth. Where there is a will there IS a way! 😀
My family, friends and colleagues have been vital to my recovery. I could not have got this far without their love and support. I have been humbled by their thoughtfulness and generosity. Friends cooked for my family, brought me treats when I could swallow again, and provided much-needed massages. My hospital rooms were festooned with “get well” cards, messages of encouragement, photos, drawings and soft toys; books, stories and articles were read to me; visitors helped relieve the tedium and monotony of hospital routines with their news, jokes and gossip. I have also joined an international online support group for patients and their families:http://www.guillainbarresupport.org
GBS is an uncommon illness which affects any age group and gender, the symptoms range from mild to severe, and recovery can take months or years. The cause/s are unknown but most people have a recent viral infection or vaccination in their recent medical history. My cause appears to have been a 24-hour stomach bug a week before the GBS developed.
Read here for detailed information:
- Brochures from GAIN website (Guillain-Barré & Associated Inflammatory Neuropathies).
- GBS/CIDP (Chronic Inflammatory Demyelinating Polyneuropathy) Foundation
- NINDS website (National Institute of Neurological Disorders and Stroke).
- Information about myelin sheath, demyelination and GBS, plus links to references and related websites are on Wikipedia.
To make for easier reading, I have told my story in sections:
- First 3 weeks
- Intensive Care Unit (ICU)
- Rehabilitation Hospital (Rehab)
- Home at Last!
- Medication, diet and supplements
- Tips and Advice.
My name is not Louise. I am writing anonymously so as not to disclose the names of the institutions I was admitted to or the medical staff who treated and cared for me.
© louisehasgbs 2014. All rights reserved.
Disclaimer: This is a personal account of my experiences. Discuss all treatment, therapies, medication, diet and supplements with your own doctor and/or specialist.